Olivier London range in support of FAST UK – the FOUNDATION OF ANGELMAN SYNDROME THERAPEUTICS
Please scroll down to view our Angel products
All profits of the sales go to this newly launched charity which is dedicated to raising awareness and finding a cure for Angelman Syndrome.
Angelman Syndrome (AS) is a neurological disorder characterised by profound developmental delays, problems with motor coordination and balance, and epilepsy. Individuals with AS do not develop functional speech. AS affects all races and both genders equally. People living with AS require life-long care, intense therapies to help develop functional skills and improve their quality of life, and close medical supervision often involving multiple medical interventions.
Tom and Tamsin Keogh have set up FAST UK – the FOUNDATION OF ANGELMAN SYNDROME THERAPEUTICS in order to raise awareness and in turn find a cure for Angelman Syndrome. Their daughter, Amelia, aged 3, has Angelman Syndrome and is modelling the Angel Collection for Olivier Baby & Kids.
Living with a child with Angelman Syndrome certainly has its challenges alongside moments filled with pure joy and laughter. Our daughter, Amelia, is an incredibly loving and happy child, common characteristics in children with AS. However, as Amelia gets older older the challenges will change. AS children find walking very challenging and many are not able to walk steadily at all. This presents many difficulties for parents although Amelia, through pure hard work and determination, started walking last summer – an overwhelming moment for us! Mobility challenges still lie ahead as she attempts to tackle steps, pavements and stairs. However, our biggest challenge with Amelia and indeed with all AS children will be the difficulties with communication – she is unable to speak and probably never will. She cannot tell us if she is thirsty, hungry, tired, if her tummy hurts or indeed that she has had a fun day at nursery. Second guessing her every move has become part of our hourly/daily lives. This can be heart-breaking but we are working with a pictorial communication system that will, hopefully, give her her own voice, albeit a silent one..
Tamsin Keogh, Founder of FAST UK FOUNDATION for ANGELMAN SYNDROME THERAPEUTICS